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[linda]

Hello, my name is Linda and I am hoping to meet someone who is experiencing the same thing I am, to get someone else's input. I suffer from Levator Ani Syndrome, something that is relatively new, and I am miserable. At this time, I am receiving Kenalog injections internally on the levator ani muscle. Today I had my second series, with the first one 2 weeks ago, then one today. My doc is going to use Botox if the third Kenalog injections do not bring any relief. My problem has been going on almost a year, and it started after having my bladder lifted. I have had three children, and presently I am 52 years old.

Is there anyone else out there that is suffering from this same syndrome? Is so, I would really like to talk with you. My email address is pmsiblinda@aol.com. I will only open a message if you put pelvic pain in the subject line.

Any one who might be able to help me, please email me!

Sincerely, Linda

[bkdaniels]

Hi Linda, how are you doing?

Antibiotic will usually cure the acute disease within about 6 weeks, according to Divina Gracia Rualo-pasigan, M.D., Gynecologist and Obstetrician, Attending Physician, New York Infirmary. If not adequately treated, however, the acute form can develope into chronic prostatis with frequent more attacks or cause structure (closing) of the urethra, blocking urine and requiring dilatation or surgery. Blood poisoning (septicema) is also a lurking potential.

Be aware of warning signs of the chronic form. In chronic form, there is usually no fever, but a great frequency of urination, loss of libido, and bouts of impotence.

Sedatives or opiates if pain is too intense, to bare, along with bed rest, broad-spectrum antibiotics if the infective agent is undetermined, and serveral hot sitz baths daily. Contact your doctor right away, before you begin any regimen. You doctor may want to culture the discharge to know the organism so that a specfic medication can be administered.

Rectal massage of the prostate may worsen the inflammation and spread the infection; it should be delayed until acute symptoms have died down. If you have a sex partner, they should be examined and treated. Plenty of fluids are prescribed but no alcoholic beverages of any kind. Sexual intercourse is not allowed until the infection has been eliminated (about 6 weeks). Since potency is often limited in this disease, celibacy is no hardship.

Best wishes,

[micia]

I am also suffering from chronic Levator Ani Syndrome but I never had anything wrong with my bladder. The symptoms in my case are all rectal. I am fine in the morning until I have a BM (very soft due to all the fiber I have been taking), then my levator muscle start spasming all day until I go to bed. It stops during the night to resume the next day after BM. I have had PT by three different therapists, acupuncture, manual theraphy by an osteopath, seen 4 different doctors (2 being colorectal surgeons) but nothing seems to work except Vaium/Ativan. Does anybody have the same symptoms?